The Academy Legacy
The Norfolk and Suffolk Palliative Care Academy
1. What was the Norfolk and Suffolk Academy?
The Academy was a collaborative established in 2012 and ran to March 2016. It aimed to create synergy between commissioning priorities for palliative and end of life care and the commissioning and quality assurance of education and training to address the variable quality and poor choice experienced by service users at the end of life.
2. What were the Academy’s objectives?
The Academy’s objectives were to:
- Closely align palliative care and education commissioning
- Quality assure the provision of palliative care education and training
- Redesign the delivery of palliative care education and training
- Bring together the workforce in ‘communities of practice’
- Raise public and workforce awareness of the issues associated with death and dying and associated taboos
The Academy’s focus was to improve the confidence and competence of the palliative care workforce (the paid health and social care workforce, service users and unpaid carers) to meet the requirements of the national end of life care competences:
- Overarching principles of palliative care
- Communication skills
- Advance care planning
- Comfort and wellbeing
- Palliative care tools
3. How was the Academy funded?
Funding and support for the Academy has been provided for the last 3 years from:
- Norfolk and Suffolk Workforce Partnership (HEEoE)
- NHS Great Yarmouth and Waveney Clinical Commissioning Group
- Norfolk County Council
- Suffolk County Council
- East of England Strategic Clinical Network for Cancer
- Macmillan Cancer Support
- HealthWatch Norfolk
Thank you to all of the stakeholder organisations who funded and supported the work of the Academy.
4. When did it close?
The Academy closed on 31st March 2016. There is an evaluation report and transition plan for the Academy both of which have been shared with local stakeholders.
5. Signposting to local palliative care services in Norfolk and Waveney
You will find information relating to local related services here for Norfolk and Waveney
6. Signposting to palliative and end of life care training
The One Chance to Get it Right report produced by the Leadership Alliance for the Care of Dying People in June 2014, set out the approach to caring for dying people in the last few days and hours of life identifying five Priorities for Care.
The Priorities for Care are that, when it is thought that a person may die within the next few days or hours..
- This possibility is recognised and communicated clearly, decisions made and actions taken in accordance with the person’s needs and wishes, and these are regularly reviewed and decisions revised accordingly.
- Sensitive communication takes place between staff and the dying person, and those identified as important to them.
- The dying person, and those identified as important to them, are involved in decisions about treatment and care to the extent that the dying person wants.
- The needs of families and others identified as important to the dying person are actively explored, respected and met as far as possible.
- An individual plan of care, which includes food and drink, symptom control and psychological, social and spiritual support, is agreed, co-ordinated and delivered with compassion.
The report also made recommendations on the desired characteristics of education and training programmes. One of the Health Education England (HEE) commitments in the One Chance to Get it Right document was to conduct research into the development and evaluation of education and training methods and programmes which addressed uncertainty and communication when caring for the dying Click here to read the report.
The e learning programme End of Life Care for All e-learning (e-ELCA)has been recommended as part of a blended learning approach:
e-ELCA aims to enhance the training and education of the health and social care workforce so that well-informed high quality care can be delivered by confident and competent staff and volunteers to support people wherever they happen to be. e-ELCA sessions have been highlighted as a resource to help with implementation of the NICE Guidelines on improving care for people who are in their last days of life Care of Dying Adults in the Last Days of Life.
There are over 150 highly interactive sessions which are grouped in eight modules:
- Advance Care Planning
- Communications Skills
- Symptom Management
- Social Care
- Integrating Learning
There is also a guide about how to use the e- ELCA programme here
Norfolk and Suffolk care academy minimum standards for education and training can be viewed here.
7. Signposting to the “Be Ready For It” awareness raising campaign /The Be Ready For It Campaign
The Academy established a campaign called “Be Ready For It” to raise awareness of the issues associated with death and dying. The resources for this campaign are on the Be Ready For It website. To view the Be Ready For It website click here.
The Be Ready For It campaign also promotes advance care planning at end of life and the use of the Thinking Ahead Yellow Folders. To have a look at a Thinking Ahead Yellow Folder and read information about how advance care planning can help you to plan for your end of life care Click here.